Welcome

"Enjoy in peace the joy God is giving you, without worrying about the future. He is reserving for you, I am sure, new graces and many consolations." - St. Therese of Lisieux, The Little Flower

Jason and I started this blog to keep family and friends updated and share our story with others. We are so grateful for all of the support and prayers that we continue to receive.

I have added a couple of links explaining Potter's syndrome and some additional info.

Thursday, July 8, 2010

Follow up appt/ MRI

On Monday June 28 they performed a MRI on the baby. Jason & I have decided that we do not want to do an autopsy & thought this would give us more info on the baby. Unfortunately, they found no renal tissue (no kidneys). Although this only confirmed what we have already been told, we were hoping for something different. The MRI also showed what they thought were some "anomalies" with three of her vertebrae. Also, they thought they could see a hole in her heart during the ultrasound. Dr. Gei said that with normal babies, the hole usually healed on its own after birth. I told him that we were hoping that little Therese would be born alive, that we could baptise her & spend a little bit of time with her. I asked Dr. Gei if anything in the MRI changed that & he said "definitely not." He thought that was very realistic.

I had another follow up appointment with Dr. Cook on Tuesday June 29. Therese is still breech & will not be able to turn (due to the lack of fluid). He feels that a C-section is best for me & the baby & said we should do it sometime the week before August 25. We will probably schedule it for Monday the 16th, only 39 days from today. I asked if there is a limit to the number of C-sections that I can have. He said we can have three more kids after Therese. Dr. Cook also told me two of his kids are less than a year apart, so we will not have to wait long after she is born to try again.

I have started buying a few things for Therese (and one extra outfit in case it's a boy). I am really looking forward to bathing & dressing her after she's born. Since it looks like I am going to have a C-section, more of that may fall on Jason (which makes me giggle a little). She may be wearing nothing but a diaper & a blanket! I found this adorable leopard print swaddling sock on-line. It will be perfect for her pictures! I ordered a couple of silver keepsake boxes - one for a lock of her hair (if she has any) and one for her birth certificate. I also ordered a kit to make clay imprints of her hands & feet, as well as a ink print kit. I have enjoyed shopping for her, as long as I can do it on-line. I know people are trying to be nice, but if I have one more stranger ask me if the nursery is ready or tell me "it doesn't matter if it's a boy or a girl, as long as its healthy, right?", I may scream.

1 comment:

  1. Angela & Jason, I just read the latest on your blog--thanks so much for doing this, even tho you have told me most of it in phone calls. I am so proud of you both --the way you are handling this is amazing. You will be wonderful parents to my grandchildren! I look forward to being there when Baby Therese is born. I hope to get to hold her a moment, when you feel it is time for that. Lets go shopping for something pink for her! I so wish I had kept one of your frilly pink outfits for her but they were all larger that we expect her to be. You were such a little horse! I look forward to seeing you in a couple of weeks & meeting your doctor. I know you are getting to be a little LARGE now & I look forward to seeing that too. See you soon! Love Mom

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